Creating a covid patient registryLooking for collaborators! 0 replies 241 views
Hi, I am Saka. I am a healthtech entrepreneur. I am starting a new company on a mission to make health data more accessible and useful.
Our initial product will be health record bank to support a patient-led Covid registry. Current registries have a limited view of the patient because they fail to capture data from different providers and to represent a longitudinal history. We believe a more complete view of the patient will help to uncover new insights.
But creating a patient-led registry is a very hard task, as most patients don't even know this type of database exists and asking them to contribute their data to research poses an additional challenge (today research is performed without patient consent which is a privacy violation)
Our company is based in Sao Paulo Brazil. I am looking for people who could support me in designing the campaign to generate both patient engagement as well as grant funding for the project.